Caden is home from his surgery! The little boy is just amazing, I don’t think I can say that enough. He was very irritable the first few hours after his surgery, shaking his head furiously. After a few hours we finally figured out why when we took of his no-no’s (arm restraints that prevent him from bending his arms) he had to itch his face like crazy! He’s really restless and a bit fussy, no crying though. He started throwing up and running a fever about 3 days afterward, scary but he’s doing much better. We are still piggybacking Tylenol and Ibuprofen for pain. He’s off his all liquid diet and we did baby food for the first time yesterday. He did really well!
I’m very grateful for his g-tube right now because he’s refusing anything in his mouth. He won’t let our hands near his mouth. I tried to wet his lips because they were dry and he did NOT like that. I haven’t had a chance to see inside his mouth yet but just so that everyone knows he had his soft and hard palate closure, gumline repair, and a nasolabial fistula (where the rebuild the nasal floor). A lot for such a little guy.
A huge thanks to my church though. I had 2 wonderful ladies from my ward stop by my house on Sunday night just to visit and say hi. Some other members of my ward dropped off dinner on Monday and Tuesday for us as well. We’ve also had so many phone calls today asking about our little son and wondering how he’s doing from family, friends and people in my ward. I can’t express my gratitude enough for all the help and support those around us have been. THANK YOU!
In other news Daniel is losing his job. As far as I understand it just came down to a numbers game at work, considering how much Daniel has done for his company and the years he’s been there it’s a blow. I can’t tell you how stressful this is because of Caden. Health insurance is our biggest worry, having been through this before we can’t afford to do the outrageous COBRA payments (typically running over $1000+ a month), house payments and medical bills we still have. Unemployment certainly doesn’t pay enough and we can’t lapse in coverage since then Caden would be uninsurable or fall under pre-existing condition clauses. So we have to find a large company with good benefits quickly. If you know of anything at all, please shoot us an e-mail. Doesn’t have to be in Utah either, we can’t really expect to hold hope to stay here but we would like to try.
We’ll keep trucking on. Next week we have Caden’s eye appointment on Nov. 3rd to see what’s going on with his eyes. A follow-up with his plastic surgery on Nov. 5th, we also have Caden’s Occupational Therapist that day and his Speech Pathologist as well. Then we also have Caden’s pediatrician appointment on Nov. 6th. Later on the 6th we have Daniel’s mom coming in from Chicago for a visit too. Busy weeks ahead!
October 28th, 2008 at 12:00 pm
I’m so glad that Caden’s surgery went well and he is back home eating regular baby food. I’m sorry he got a little sick a few days after though, that’s sad. I’m sorry to hear about Daniel’s job, too. I understand the stress of that. Jeremy was laid off from his job when I was pregnant with Kyara-we had to do COBRA for Jaxon and me and I remember it being pricey! Good luck with the job search and I hope you find somewhere right here. Lots of hugs!
Andrea
October 28th, 2008 at 12:01 pm
Wow! Caden is one tough little guy. I feel bad for him
It’s never fun to have surgery. I’ll be anxiously awaiting the news on all his follow up visits. That totally bites that Daniel is losing his job. Scary. This won’t help solve your problem, I realize. But I know that UPS is hiring to work in the building part time (nights) and after 3 months you get benefits that are AWESOME!! Samantha was in the hospital for 5 1/2 months and we didn’t pay a dime. It doesn’t even come out of your pay check. The pay isn’t the greatest (ok, it down right sucks) but the benefits are great once you get them. Good luck. We’ll be keeping you and your family in our thoughts.