Coburn Kids

I have to tell you about the sweetest and most inspirational family right now that live in Provo, UT. I was introduced to and talked with Jeanine Mack when she posted on the Utah Yahoo group for cleft children. Her son Kaden was diagnosed with a cleft lip and hydrocephalus at an ultrasound. Because the ultrasound was measuring the head size a number of weeks ahead of the body she was going to be having a c-section to deliver their little boy early.

Their little boy was born on Feb. 15th at 36 weeks early and is currently at Primary Children’s hospital in their NICU. He has a rare condition called (Lissencephaly) which is a smooth brain and results in an inability to move, communicate and think. Besides a wide cleft, the other problems are widespread and involves some of the other important parts of the brain such as the Pituitary Gland which is the control center for the essential functions of the body. His right eye did not form and his left eye is tiny and non-functional. His optic nerve also did not form. This special spirit is only with their family for short time. They are hoping to get the chance that he will be able to come home for a short time so that he can pass away there.

If you want to follow their story you can see their blog here: http://sgmackfam.blogspot.com/ This little boy has touched so many lives only being a few days old. Of special note is that this little boy’s great-great Grandpa was Spencer Kimball! Their strength during such a difficult time and their ability to truly see the big picture and rejoice in the days they have with their son will touch your heart.