Coburn Kids

To the left is a new link called “Medical Glimpse of Caden” it’s a bit overwhelming when you read it but it’s a great tool for Daniel and I so that we can keep track of Caden and let other doctors know what he has and what he has overcome. It’s really not as bad as the list details.  

Caden’s feedings are getting worse though. We used to be able to consistently get over 60-70 ml’s in by bottle each feeding.  That number has now dwindled down to 30-50 ml’s. This weekend he was refusing the bottle completely on some feedings.  He hasn’t taken a full bottle in a number of days now. We are now going to be talking to his OT and pediatrician for maybe a referal to a GI (gastroenterologist). If Caden can’t increase his feedings then we are looking at another surgery for a permanent feeding tube directly into his stomach.  An NG tube is only meant for short-term use and we are now starting to push that mark.  I would not have said a few weeks ago that Caden has an oral aversion but I think the NG tube is becoming more and more of a problem. Not to mention the guilt and heartache having to restrain your child and get it down into their stomach and the skin irritation he has from all the tape.

Visits this week for Caden include his OT on Thursday and his Echo at Primary Children’s on Friday. Last week Caden visited with his Plastic Surgeon and had his nasal stints and Logan’s Bow removed. He’s a much happier baby and able to actually breathe now! His lip looks great though and he’s started to return to his smiley self again. Yesterday you couldn’t get him to stop smiling at you.