Coburn Kids

Caden is doing wonderful after his surgery.  He’s so uncomfortable though with the Logan’s Bow (metal wire that you see in the pic to the left) and the nasal stints are an absolute nightmare. They’re too small so we can’t suction him out and he gets so congested.  Add the NG tube there and he’s breathing out of 1 little nostril. He’s such a trooper though. He slept for nearly 3 days straight after his surgery. He was on morphine and some Tylenol w/ Codeine. Just as a refresher, Caden had his bilateral cleft lip repaired, a palate prosthesis pinned into the roof of his mouth, and a bilateral inguinal hernia repaired. Though Caden did desat to around 85% several times during that first night it was only because of congestion. His new lip looks awesome, Dr. Warnock did a great job. We had hoped that with the surgeries it would improve his feeding, and though it’s been just a week and we can feel a difference when he chews on the bottle nipple, he’s still only taking 1 full bottle a day and then the other times is 1/2 bottle, 1/2 NG tube.

Caden is up to 12lb. 2oz. now. Still nowhere near the lines on the growth chart but he’s doing nicely in that area. Without that NG tube I really doubt he’d be anywhere close to this. We are now wondering if Caden’s heart condition might be what’s prventing him from taking full bottle feeds. He gets very tired 1/2 way through and just doesn’t seem to have the energy to finish a bottle.  We have his Echo on Feb. 1st with Dr. Everrett (same one that did Adessa’s Echo!) and we’ll see if that might be a factor then. Another refresher… Caden has an AP Collateral with a L->R shunt and Left Atrial Enlargement. He might also have Hypertrophic cardiomyopathy or HCM but we’ll get all that confirmed on the 1st.

Caden has yet to get sick, my girls obsessive compulsion with hand sanitizing is paying off! To help us out with the surgery Grandma Coburn came out and stayed with us for 2 weeks.  What a blessing that was, to not have to worry about who could watch the girls when and that they could have some normalcy being able to stay with Grandma at our home.  I could tell it still really got to Gena though as she was quite emotional in the days following Caden’s surgery. I expected this though and she was a trooper.

Caden before surgery

Caden after surgery

Girls playing in the snow

Girls at the Kids Saftey Fair with butterflies painted on their faces

Girls with Grandma Coburn